The iceberg of illness1
is an important concept in understanding the relation between health
and illness and one that healthcare systems ignore, Titanic-like, at
their peril. The pyramidal iceberg has health at its base and tertiary
care at its apex; as individuals develop symptoms they pass upwards
through self care, primary care, and secondary care, with specialised
services encountering an ever more highly selected patient population.
We know surprisingly little about what prompts movement across these
interfaces, particularly that between self care and primary care.
Initiatives within the NHS to make access to services easier could have
profound effects, yet the necessary research is only just being
defined.
The movement of patients from self care to primary care and from
primary to secondary care determines workload for health services, and
relatively small changes at the base of the pyramid can have
substantial impacts on demand at higher levels. For example, population
screening, ascertainment by case finding, and genetic testing may
all substantially increase the movement of people across the self
care-primary care interface. As well as impacting on the use of
resources, the quality of self care is important for the quality of
life of individuals who deal with their symptoms without seeking formal
medical advice.
Diary studies suggest that as few as one in 40 symptoms ever reaches a
medical consultation.2,3 Population surveys have shown
that common gastrointestinal symptoms, such as rectal bleeding,
irritable bowel syndrome, and dyspepsia are present in 15-40% of the
general population but that only a quarter to a third of these people
seek medical advice about them.4 The reasons for doing so
are complex and include severity of symptoms, their impact on quality
of life, other events in patients' lives, and patients' health
beliefs.5 Patients obtain information about their symptoms
from a range of sources, although little systematic research has been
carried out on the factors which inform healthcare seeking decisions.
Self care is, of course, not only important at the
lay-professional interface but permeates the health system. Concepts
such as patient enablement6 and the concordance model of
doctor-patient interaction7 have been developed recently.
Self care is also an essential component of the management of chronic
illness.
Recent policy developments, mostly centred around the desire to improve
access, may have begun to tilt the balances across some of these
interfaces. Walk-in medical centres, direct access telephone lines
(such as NHS Direct), and other alternatives to traditional primary
care require careful evaluation, not just in terms of their immediate
benefits to patients but in relation to longer term and more subtle
changes in healthcare seeking behaviour. For example, the gatekeeper
function of primary care, controlling access to expensive and invasive
secondary care services, is an important component of a cost effective
health service.8 The erosion of personal primary care in
recent years, augmented by well intentioned initiatives to improve
access, might well lead to escalating and inappropriate use of precious
resources. Persuasive arguments for better access to
services9 need to be tested against an analysis of the
costs as well as benefits of new arrangements.
A large research agenda surrounds self care, which begins
with the need to understand patients' constructions of symptoms and
disorders, particularly when different cultural contexts may lead
to dramatically different responses to illness. We need to have a
better understanding of patients' needs and expectations of health
advice and care, of the best ways of providing information to enable
people to deal with their health concerns themselves, and of ways to
help them to use services most effectively. Research into the efficacy
of self help information about minor illness and common symptoms needs
to be extended to examine the value of better targeted and more
sophisticated sources of information, including interactive
communication.
The response of primary care professionals to patients with
common, minor illnesses is itself a determinant of subsequent
patterns of healthcare seeking behaviour.10 More research
is needed to guide practitioners towards the optimum ways of
configuring services, interacting with patients, and providing drug
and non-drug solutions to illness. The role of lay people and
professionals in providing this advice requires further study, and, in
particular, the emerging role of the community pharmacist as a source
of advice about acute and chronic conditions needs further
research. Such research is likely to be focused at the interface
between self care and primary care and will require imaginative
research methods and collaboration between clinicians, other healthcare
professionals, and behavioural and social scientists. A welcome
initiative is the recent establishment by the Proprietary Association
of Great Britain (www.pagb.org.uk) of a fund to support
research in this subject.