Former nursing student Laura Shave has ME; she shares her views
Myalgic encephalomyelitis is an illness that cuts against the grain of how doctors are trained and challenges them to the core. If you cant give a patient medication what can you do? Doctors choose to be doctors because they want to help people, and, if they cant, then they despair. Despite amazing technological and medical advances, patients with ME present the same symptoms year after year, sometimes deteriorating and often not tolerating medication, which is extremely frustrating.
Doctors could learn a lot by listening to patients experiences. Many patients are well read, especially those who have been ill for a long time, and have ideas on what might help or what theyd like to try next. Self help measures have helped me. Using and understanding medical terms have made doctors shy away even more; one doctor suggested I have multiple sclerosis and then on a follow up visit dismissed his